Dear My28Days Community,
Ms. Karima Hijane and I have a question for women with Primary Ovarian Insufficiency (POI) worldwide. Have you found a clinician or other caregiver you have learned to trust with your care? If so, please let us know. The Mary Elizabeth Conover Foundation seeks to network with clinicians, other caregivers, or organizations who have demonstrated this capability. Trust is a fundamental aspect of human relationships. It is the belief that another person or entity will act in a reliable, honest, and competent manner.
Karima Hijane, a woman with Overt Primary Ovarian Insufficiency (POI), has the trust of nearly 7,000 women in her closed Facebook group “Primary Ovarian Insufficiency – A peer-to-peer support.” Doctor Lawrence (Dr. Lawrence M Nelson), a recognized expert on POI and former National Institutes of Health principal investigator, has the trust of over 4,000 women in his closed Facebook group “A Community Resource for Primary Ovarian Insufficiency.”
Karima and Doctor Lawrence have worked together to advance the cause of POI for the past 17 years. They have published peer-reviewed scientific reports and are now collaborating on a POI social enterprise project supported by the Mary Elizabeth Conover Foundation. Care with no effective distribution process is no care at all. With our Facebook groups as proof of concept and trust in this initiative, we are building a global digital medical hub for POI.
When we trust someone, we are willing to be vulnerable and rely on these persons or organizations to act in our best interests. However, trust can be fragile and easily broken. Once broken, it can be a struggle to rebuild trust and may require significant effort and time. Overall, trust is an essential component of healthy relationships and is necessary for individuals to feel safe and secure.
Building trust in a global online women’s health care and research social enterprise requires a multi-faceted approach. First and foremost, it is essential to be transparent about the organization’s mission, values, and practices. We can achieve this through clear communication and regular updates on the organization’s website, social media channels, and other relevant platforms.
Secondly, the social enterprise should prioritize user privacy and security. We can achieve this by implementing robust data protection policies and procedures and utilizing secure communication channels and technologies.
Thirdly, the organization should demonstrate a commitment to quality and excellence in all aspects of its work, including research, product development, and customer service. We can achieve this by investing in top talent, leveraging cutting-edge technologies, and adhering to industry best practices and ethical standards.
Finally, the organization should actively engage with its community of users, partners, and stakeholders to build meaningful relationships and foster a sense of shared purpose and commitment. We can achieve this through regular feedback and input sessions, community events and forums, and other collaborative initiatives. By taking these steps, a global online women’s health care and research social enterprise can build trust and establish itself as a trustworthy partner.
Incorporating a visual image of a butterfly fluttering over a woman’s well-manicured palm can effectively represent trust in a global digital women’s health care and research social enterprise. The butterfly represents transformation, growth, and beauty – all associated with positive change and progress. The woman’s well-manicured palm represents the care and attention necessary to build trust in this organization. The simple bracelet represents value and honor. By combining these elements, the visual image communicates the message that the organization is committed to growth, change, and beauty while also being attentive to the needs of its users and partners. This image can build trust and establish the organization as a reliable and trustworthy partner in the global women’s health care and research community.
Please join us on our Facebook groups and let us know about clinicians, other caregivers, and organizations you trust to care for your needs as a woman with POI.
Take care and be well,
Dr. Lawrence M. Nelson, MD, MBA
Director, My 28 Days® Initiative
President, Mary Elizabeth Conover Foundation, Inc.
